Showing posts with label acoustic neuroma. Show all posts
Showing posts with label acoustic neuroma. Show all posts

Monday, March 07, 2016

Support Group Meeting

We had a great support group meeting at the La Jolla library on Saturday. Fifteen people of varying ages and occupations showed up to talk about their acoustic neuromas, their treatment and issues. We had a Costco employee, a life coach, singer, teacher, mechanic/chef, house cleaner, two chiropractors, a nurse and an engineer. Ages ranged from 25 to 76. Our youngest person was only 4 weeks out from her surgery and had suffered a CSF leak which required re-hospitalization - she looked great and was mending quickly. We all talked and listened to each other for 3 hours without even a bathroom break. Plenty of useful information was traded. Sharing a room with people who all "get" what you experience is therapeutic. They know what wonky head is and about the staggering and lack of directional hearing, big box store trauma, fear of social events (because you can't hear anyone), "bad" days, the stress of straining to hear, AN exhaustion. We all go through the same stuff. 

On our way home we stopped at The Barrel Room in Rancho Bernardo for dinner. Richard had an excellent barramundi with pureed fava beans; a salad of shaved asparagus, white bean paste and stuffed squash blossoms and a glass of "Complicated" wine - a red blend. I had the short rib pappardelle with ricotta which was good but served in an awkward dish on which I couldn't rest my knife. Wherever I put it, it slid down into the ricotta, getting the handle all gooey. They should serve the bowl on an underliner. The bowl was kind of like this one....

Not the actual dish, but one like it.
I know it seems excessively picky to comment on this, but it's one of those things we used to pay close attention to when working in the food business. Somebody (not the developer) must always sit down and consume each new item with the utensils intended for use....it's just as much a factor in product development as the food itself. Believe me, I learned this the hard way.

I was so impressed with the attention to detail in the dining rooms on the Oceania cruise line - for instance if you're wearing black, they give you a black napkin. A small thing, but a big clue that they are paying attention.

Finally, I laid my knife down on the bare table between each use, getting the table sticky and making a mess. By the time I finished eating the dish, my knife handle was covered with ricotta. Aside from that, the pappardelle dish was fine....well, the short rib meat was overly-steamed or sous-vided to the point of being soft. There's a big difference between tender and soft. I'll leave it at that. The wine list in the restaurant is excellent and the wines are well priced. The noise level was tolerable when we were there and the ambiance convivial. Service was excellent.

We'd go back, but only for an early dinner. It was 5:00 when we sat down and by the time we left at 6:30, it was getting noisy and crowded. 

Tuesday, January 24, 2012

Turning a deaf ear

I went to a new ENT yesterday, Dr. Jacobs (760) 724-8749 in case anyone's looking for a congenial doc with a sense of humor and a good "bedside" manner . He laughed when he saw my medical history and quipped that I knew all the ENT's in North County. I think he's right. My HMO keeps me moving around.

After my MRI was reviewed by a number of people, the consensus is that my tumor is stable. Whew. The differences in size observed were due to variances in measuring techniques used by radiologists/neurosurgeons.

I had a final hearing test yesterday to confirm that the irradiated ear is totally deaf...stone deaf, as the saying goes. Here's how the results look.


If you were designing such a form wouldn't you put the left ear results on the left side and the right ear results on the right side? CNT means can not test. They seem to avoid the use of the word "deaf" for some reason. My right ear, now doing double duty, is pretty damn good if I do say so myself.

A non-hearing ear can be useful when you're trying to sleep in a noisy hotel room. That's about the only good thing about it.